Wednesday, January 31, 2007
We took Izzy to see Dr. Wright in Bethany today to consult about botox injections because her left foot is causing problems and the botox
was really effective last time. He agreed that she needed it and then
after examining her legs, he ordered a x-ray of her hips because he is
concerned about her left hip. There is a possibility that it could be
out of socket with is a very common occurrence for her condition. We are
taking a proactive approach to this news and are doing things now to
try to help the situation. Thebotox is scheduled for April 2 and we
will have the x-ray done before that. Please pray for the x-ray to
reveal that her hip is fine and that there is no need for more
aggressive treatments. He also discussed doing an eeg on her. We decided to get past this first and then decide. The last eeg we did was in dallas. We took her off the phenobarbital because there were no seizures. Matt asked the dr.
about her startles and left turn laughs. He suggested that if she is
having seizures they could interfere with progress because they interrupt her brain's process. Please pray that she is not having seizures and will not need anything further for this.
I talked to her pediatrician this afternoon and she is going to schedule
the x-ray etc. She has also decided to go ahead and prescribeambien.
Izzy went to school today. She seemed to have a good day. She really likes
all the little boys in her class, so much so that her ST, Margaret is
doing her therapy in the classroom. She gets mad if you take her away
from the other kids.
We went to horse therapy Monday. She did so well riding Opie. She sat up tall and rode for about 30 minutes. Opie was almost running so it was a workout for us all :)
Even Joy noticed that Izzy is really looking more and saw improved cognition.
Isabelle is so healthy, she is so beautiful and she is so sweet. She is a little
doll. I feel like an expectant mother, waiting for the birth of the
baby. I am waiting and expectant that she is going to blossom and that
she is going to do great.
Please keep her in your prayers.
I love you, Lord; you are my strength.
The Lord is my rock, my fortress, and my savior;
my God is my rock, in whom I find protection.
He is my shield, the strength of my salvation, and my stronghold.
I will call on the Lord, who is worthy of praise,
for he saves me from my enemies.Psalms 18:1-3
Tuesday, January 16, 2007
We have been blessed with a lot of ice this weekend. The kids have been having a lot of fun riding the sled down the hill. Matt thought Izzy needed this experience as well so today we bundled her up and took her out sledding.
It is so cold and so slippery out!
Sunday, January 14, 2007
Izzy had a good week back in school. We had her Psych Eval. at the school on Thursday, now when the HCA get that faxed in we should be all set for tefra and be able to move forward on getting all her teeth crowned (ugh). I am very happy that we are one step closer.
At school they worked with her switch, they are trying to use it for her to answer yes or now to questions or choices for what she will be doing. They are trying to teach her that they will do what she chooses.
I got a call on Friday letting me know that Insurance has pre-approved her new stroller. This is also pretty exciting, her stroller is so heavy!
She had the usual chiropractor visits at Heath's office on Tuesday & Thursday. Therapy daily at home. She is getting stronger everyday.
We have been wanting to stop using pediasure for a while. I have continued to use it because it is easy not only feeding it to her but also knowing that she is getting enough calories etc. I did feel like it was too much sugar and that she needed to move on. She didn't have any pediasure all weekend. I fed her blended vegetable stew last night, she ate it but I think it was too spicy because I got a lot of funny faces. I am going to have to be more mindful of making her food before spicing things up. I made her a 'shake' tonight with blueberries and cereal and her juice plus vitamins. I feel like she gets a lot of what she needs from the juice plus. She has been so healthy. I attribute this to God first and foremost. I also know that God has led us in the right direction in so many areas of Izzy's recovery. One has definately been the juice plus.
I made an appointment with Dr. Wright at the Children's Center for the end of the month to schedule more botox injections. I feel like her left foot is pretty tight and she isn't enjoying her walking at school as much. She also tends to scissor her legs and the injections in her thighs last time really helped this. I feel calmer about it because it was so easy last time. She didn't cry or act uncomfortable. Dr. Wright does a really good job.
It's official, the Austrialians (AIAHP) are coming February 21 and will evaluate Izzy the 21 and 22nd. I am looking forward to viewing the new programme for her. I know they will see she is doing great.
I cannot say, "she is walking." but I can say, "she will be walking." and she will. I know it! I serve a mighty God and I believe His promises. I also believe it is His will to restore her body.
Tuesday, January 09, 2007
Izzy is doing great after a LONG Christmas break. The kids all went back to school today including Isabelle. She seemed ready to go back although she had a big pouty lip when I put her in her stroller to go into the school. I am sure she is having a great morning. I was able to go to the park and take Lady aka White Dog for a walk. It is about 32 degrees, so it was perfect!
Chad from AIAHP (australia) called last night. Izzy is scheduled to be evaluated and reassessed on February 21-22. I am excited to see how she has improved in their opinions, although I know already that she is improving. I am also excited to see how the program will change since we discussed the fact that they brought her program down a level to have a starting point. We'll see. Please keep this in your prayers. There are so many different choices on therapy, they are all very expensive so you really have to pick and choose what to do. I know God leads us toward the right people and I trust Him to continue to guide us.
Wednesday, January 03, 2007
1…. hearing a friend's voice on the phone.
2... a clean house.
3... seeing a smile on the face of my children.
4... recieving snail mail!
5... good reports from Izzy's teachers and/or therapists.
6... watching our dog lady eat pistachios after shelling them carefully with her teeth.
7... seeing dad walking up the road toward my house.
8... listening to a favorite song.
10... watching mom do head turning every evening while singing, "turning izzy's head."
11... a good sale.
12... sweet happy memories.
13... reading comments from you.
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